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Our Lived Experience

15 posts

This is where we tell our own story. Eden is non-verbal and autistic, and he can’t be left alone, so our days and nights are built around him. These posts cover the good days, the hard nights, and everything in between: the routines, the scares, the progress at school, the moments he laughs. It doesn’t speak for every autism family. It’s one family, showing you what it looks like from the inside.

OOur Lived Experience
The Telepathy Tapes: why so many autism parents can’t stop listening
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  • 4 minute read

The Telepathy Tapes: why so many autism parents can’t stop listening

  • bytim
  • 3 November 2026
The Telepathy Tapes made non-speaking autistic kids the centre of a chart-topping podcast. Why parents like me connect with it, and what critics say.
OOur Lived Experience
A Day Without Words: one night of silence to make the world listen
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  • 7 minute read

A Day Without Words: one night of silence to make the world listen

  • bytim
  • 3 November 2026
A Day Without Words is an overnight event I want to run: sunset to sunrise with no speaking, spelling or texting. Here's the idea, the dream venues and how to help.
OOur Lived Experience
The scientist behind The Telepathy Tapes: Jesse Michels meets Ky Dickens and Dr Diane Hennacy Powell
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  • 4 minute read

The scientist behind The Telepathy Tapes: Jesse Michels meets Ky Dickens and Dr Diane Hennacy Powell

  • bytim
  • 3 November 2026
Jesse Michels' American Alchemy sat down with Ky Dickens and psychiatrist Dr Diane Hennacy Powell. Who she is, what she found, and why it divides people.
OOur Lived Experience
My son doesn’t speak. So I’m telling his story.
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  • 3 minute read

My son doesn’t speak. So I’m telling his story.

  • bytim
  • 29 October 2026
Eden is 13, autistic and non-speaking. He can't tell his story, so I'm telling it for him. Start here: who we are and why What About Autism exists.
OOur Lived Experience
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  • 3 minute read

Getting down to the beach with Eden

  • bytim
  • 27 October 2026
Counting down to beach days with my autistic son Eden. He loves the water, which is why water safety comes first. What every parent should know.
OOur Lived Experience
Why I appreciate the little moments
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  • 3 minute read

Why I appreciate the little moments

  • bytim
  • 26 October 2026
Saturday mornings with my autistic son Eden: why he reaches for my stubble, loves a tight squeeze, and why I give him space when he's stimming.
OOur Lived Experience
My son can’t speak. So I wrote him a song.
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  • 2 minute read

My son can’t speak. So I wrote him a song.

  • bytim
  • 17 October 2026
Hidden Histories is a song I wrote for my non-speaking autistic son Eden, set to footage of our ordinary life. It's now the theme of What About Autism.
OOur Lived Experience
I know I can’t look after my son forever
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  • 3 minute read

I know I can’t look after my son forever

  • bytim
  • 16 October 2026
A normal night in our house: brushing my 13-year-old's teeth when he has sensory processing differences. Patience, hugs, and a question every carer asks.
OOur Lived Experience
Six years without sleep: life with my non-speaking autistic son
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  • 3 minute read

Six years without sleep: life with my non-speaking autistic son

  • bytim
  • 15 October 2026
From about three until nine, my autistic son Eden woke at 1am and didn't go back to sleep. Six years of it, while running two businesses.
OOur Lived Experience
He can’t speak, but he just asked us to take him for a drive
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  • 3 minute read

He can’t speak, but he just asked us to take him for a drive

  • bytim
  • 14 October 2026
Eden is 13, autistic and non-speaking. For the first time in his life he asked us to take him for a drive, by moving our hands to the doors.
OOur Lived Experience
Our first sign of autism was flicking cups
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  • 3 minute read

Our first sign of autism was flicking cups

  • bytim
  • 13 October 2026
At ten months old my son Eden started flicking cups, over and over. Looking back, it was our first sign of autism. He was diagnosed at two and a half.
OOur Lived Experience
Life with my non-speaking son, from fifteen months to high school
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  • 2 minute read

Life with my non-speaking son, from fifteen months to high school

  • bytim
  • 11 October 2026
Photos of my son Eden, autistic and non-speaking, from fifteen months to his first day of high school, and a call for families to share their story.
OOur Lived Experience
He can’t say I love you, but this says it all
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  • 2 minute read

He can’t say I love you, but this says it all

  • bytim
  • 9 October 2026
My son Eden is non-verbal. Walking home from the park he held my hand and squeezed it when I talked to him. Sometimes love doesn't need words.
OOur Lived Experience
The builders who dropped tools so my autistic son could catch the bus
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  • 3 minute read

The builders who dropped tools so my autistic son could catch the bus

  • bytim
  • 7 October 2026
Noise stopped my autistic son getting on his school bus. I asked the builders to stop for five minutes. They did it every morning for four months.
OOur Lived Experience
The first time my non-speaking son greeted me home
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  • 3 minute read

The first time my non-speaking son greeted me home

  • bytim
  • 5 October 2026
Eden is 13, autistic and non-speaking. The day he greeted me home from school for the first time, after eleven years of waiting. A dad's story.
What About Autism Help keep this going. Our kids are not broken.
The system is.
Support me on Patreon
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